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Mesothelioma Asbestos Cancer Centers


 
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National group awards Westchester Children’s Advocacy Center

November 18th, 2009 at 1:52 pm by Rebecca Baker.

This just in from the Westchester District Attorney’s office: The Valhalla-based Children’s Advocacy Center has received national accreditation from the National Children’s Alliance, a professional membership organization dedicated to helping local communities respond to allegations of child abuse.

The Children’sAdvocacyCenter, part of the Westchester Institute for Human Development, is one of only 22 programs inNew York state to have NCA accreditation. The key to Westchester getting accreditation was its multi-disciplinary investigative team, made up of the District Attorney’s Office, theCountyAttorney’s Office, the County Department of Social Services, local police departments, victim advocacy groups and mental health providers.

Westchester child advocacy center offers young victims of physical and sexual abuse the chance to get the medical, emotional, and advocacy services they need. The center’s centralized location allows law enforcement and Child Protective Services to coordinate investigations and make sure that children aren’t victimized by the system. The National Children’sAlliance works side-by-side with programs and professionals across the country to lessen trauma for abused children, break the cycle of abuse, and enhance prosecutors’ abilities to charge abusers in both the criminal and family courts.

Accreditation is subject to review every five years.

http://whiteplains.lohudblogs.com/2009/11/18/national-group-awards-westchester-childrens-advocacy-center/

 
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Support center, TheGathering Place, offers patients a place to wage war with cancer

By Angela Townsend, The Plain Dealer - November 02, 2009, 9:00PM

eileen-saffran-the-gathering-place.jpg

Eileen Saffran sits in Norma’s Garden, at theGathering Place in Beachwood. Saffran is founder and executive director of the cancer support center.

Services are spreading

TheGathering Place offers a variety of free services -- exercise classes, massage therapy, art therapy, 19 different support groups, individual services, nutrition classes, special events -- for people with cancer and their families.

The concept of a stand-alone community cancer center, separate from a medical facility, is not new. The Wellness Community, a cancer support center founded in 1982 in California, and Gilda's Club, founded in New York City in honor of the late comedian Gilda Radner, recently joined forces to become the largest provider of cancer support worldwide with nearly 50 local affiliate locations, including Wellness Community centers in Cincinnati and Dublin.

TheGathering Place is among a small group of several dozen independent centers nationwide.

The January issue of the Journal of Psychosocial Oncology will highlight the effectiveness of The Gathering Place's programs and services and publish two research papers that analyzed data from 2007. Just under 300 new clients were questioned, once during their initial visit and once six months later. The results showed that clients benefited the most from expressive art therapy and the least from educational lectures, said The Gathering Place's program director, Ellen Heyman, who coordinated the information gathering.

"The information really helped us guide our programming," she said.

Two places to go

· TheGathering Place East, 23000CommercePark, Beachwood

· TheGathering Place West,800 Sharon Drive,Westlake

· Phone: 216-595-9546. E-mail: info@touchedbycancer.org. Web site: touchedbycancer.org

FAST FACTS

· 17,400 -- The number of individuals who have taken part in programs and services since The Gathering Place opened in 2000.

· $360,000 -- Annual budget for the center's first full fiscal year, 1999-2000.

· $1.8 million -- Annual budget for 2009-10.

 

In 1998, Eileen Saffran ofOrange began to work on the blueprint for what would becomeNortheast Ohio's first nonprofit cancer support center, The Gathering Place.

She had nearly 20 years of experience in the health care industry as a social worker from which to draw. She also had the experience of being a daughter whose two parents were diagnosed with, and died of, the disease.

The center opened its doors in January 2000. Since then, it has moved from its original space, a storefront with 6,100 square feet in Beachwood, to an expansive, 12,000-square-foot facility and added aWest Side location.

Saffran, 56, recently sat down with The Plain Dealer to reflect on the center's beginnings and 10-year journey.

When in your career did you start focusing on cancer -- the clinical aspects and the psychological and emotional effects on patients and their families?

I came by this naturally. I was a clinical social worker. My first job in theCleveland area was atHuronRoadHospital [nowHuronHospital, inEast Cleveland]. I was assigned to oncology and psychology. Oncology -- I was fascinated with it.

I was particularly made aware of the kinds of things that happened in a hospital setting, the cuts that were made on the nonrevenue side, often in the areas of support and education. I also learned about the nuances of integrative and complementary medicine that were hitting theMidwest in the 1990s. I saw a lot of women with breast cancer. I was impressed with their ability to live with courage.

Talk about the beginnings of TheGathering Place.

Both of my parents were diagnosed with different types of cancer within six months of each other. They died within three years of each other. It wasn't until I was personally immersed that I realized there was nowhere for people to go who didn't know the lingo, who didn't know what resources there were.

I started looking into funding for the organization in 1998. It started as a grassroots movement. People were in the trenches. We started meeting around a table, and in 18 months we got our doors open.

People always say, "Why don't you franchise?" [But] the interest was to meet the needs in the Greater Cleveland area. I had no desire to work with a bureaucracy. We've stayed independent. It was a great decision. We can really create programs like this [snapping her fingers together].

How do people access TheGathering Place for the first time?

The rule of thumb is that the referral comes from an oncologist, oncology nurse, social worker, or [a hospital's] child life coordinator.

The literature shows that it almost takes an average of seven [suggestions] before someone is able to [decide to access outside support]. To do so, it means that they have accepted the reality of a cancer diagnosis.

Do you need a medical referral?

No. There is no request to see confirmation of diagnosis. All it takes is the courage to come through the doors.

Where does TheGathering Place fit in with other cancer centers?

We're working closer and closer with The Wellness Community [a center founded inCalifornia in 1982 that now has multiple locations in theUnited States]and other independents across the country. We're in this together. We're consulting with groups in theCleveland area. We've helped start a center inAkron [Stewart'sCaring Place, which opened in 2003], and we also helped The Caring Place inLas Vegas [The Gathering Place served as the prototype for the center, which opened in February 2008].

Where have you seen the most growth in services?

We've seen a huge uptick in the African-American community. Kris Austin [director of community outreach and marketing] has really worked hard going out to the community. [The Inner Peace and Strength Breast Cancer Support Ministry, a support group for African-American women, began in 2002. It meets once a month.] We've also done that with the Hispanic community, through the Amigas program atMetroHealthMedicalCenter.

Another jump is in the number of young adults with cancer.[See story above, "Support proves essential for young woman with cancer"].

What are some services that people may not realize you offer?

Medical bill consultation. We have volunteers who can help translate what [bills] mean. We also have volunteer attorneys who help with living wills and estate planning. And we also have resume writing.

What's next?

We're looking at the whole world of educating professionals, using our information to further the field of psycho-oncology.

We are in a kind of treading-water phase. The economy can only bear so much to support our work [every program and service is free; all money raised comes from private donations]. But we don't remain stagnant for any length of time. We were born out of an entrepreneurial spirit.

http://www.cleveland.com/healthfit/index.ssf/2009/11/support_center_the_gathering_p.html

 
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New Hope for Mesothelioma Sufferers atTexasCancerCenter

Wednesday, October 14th, 2009

Houston,TX—The University of Texas M.D. Anderson Cancer Center is poised to provide new hope to patients suffering from the deadly asbestos cancer mesothelioma. Not only does the cancer center have over 30 full-time mesothelioma specialists on staff, it also offers an array of clinical trials and other programs to assist with mesothelioma patients’ wellness in all areas.

Approximately 150 mesothelioma patients each year receive the highest standard of care from the qualified staff at theM.D.AndersonCancerCenter. Each of these patients has a team of doctors – including radiologists, oncologists, and pulmonary specialists – providing care for their case. In addition, patients can benefit from the expertise of social workers who provide assistance with the practical and emotional aspects of dealing with a mesothelioma diagnosis.

Since mesothelioma is such a rare cancer, affecting only 3 percent of cancer patients nationally, theM.D.AndersonCancerCenter is one of only a handful of cancer centers around the world that has a dedicated program for this asbestos cancer. Yet mesothelioma is an aggressive, severe cancer. It originates in the mesothelium, which consists of the peritoneum surrounding the abdomen, the pericardium surrounding the heart, and the pleura of the lungs. Most often, mesothelioma affects the pleura, in which case it is usually referred to as malignant pleural mesothelioma.

Almost all cases of mesothelioma can be traced directly to asbestos exposure, since that building and insulating material has been recognized as carcinogenic. Often, the disease remains latent within the body for up to 50 years after the toxic exposure, at which time it has progressed to late stages. Mesothelioma currently has no cure, but thanks to the research and clinical studies atAnderson, in addition to the physicians’ dedication to improving quality of life and advanced treatment solutions, patients can receive care in order to extend their life expectancy.

http://www.asbestos.net/news/new-hope-for-mesothelioma-sufferers-at-texas-cancer-center.html

 
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St. Luke's to open facility in McAdoo

By TOM RAGAN (Staff Writer tragan@standardspeaker.com)
Published: October 7, 2009


McADOO - St. Luke'sMinersMemorialHospital plans to open a physical therapy and primary care facility in McAdoo, possibly by the end of this year or the early part of 2010.

McAdoo Borough Council met with officials from St. Luke's last month according to council member Marion DeBalko to discuss the combined facility the hospital is planning to open.

At Tuesday's work session, Carl Pellington - architectural design consultant for Richard Henry Construction, the firm in charge of renovations at the facility - talked to the council about St. Luke's latest satellite.

"St. Luke's Miners Memorial Hospital is opening a primary care and physical therapy unit that will occupy the front and back of a building located at 14 N. Kennedy Drive in McAdoo," Pellington said.

He went on to say that the two entities will share the same facility, but will have two separate identities. Pellington's firm is designing and constructing the ground floor of what Pellington said is a very old building in McAdoo.

St. Luke's will staff the facility, which will include three examination rooms, a blood-draw lab and a room for minor procedures in the primary care section. The other half will have therapists and rehabilitation specialists for physical therapy needs.

St. Luke's is renting the ground floor and the firm is making the necessary changes to the building according to Pellington.

"We hope to start in about a month if the proper permits are issued by the borough planning and zoning departments and we have a three-month contract from that time, so it's possible we could have it completed by mid-December or early in January," Pellington said.

He said the firm did discover some asbestos, which will have to be removed from the building before any construction can begin.

"We can go in a month," Pellington said.

McAdoo Borough Council was excited at the prospect of St. Luke's opening the facility in the borough.

"It's a positive thing for the borough," Joe Madochick, council president said.

"It will be a good thing for McAdoo," DeBalko said.

http://www.republicanherald.com/news/st-luke-s-to-open-facility-in-mcadoo-1.314586

 
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Mesothelioma Treatment Centers- How to Find the Best One For You

Most mesothelioma doctors work at hospitals that are good at cancer care. Mesothelioma cancer is best treated at large cancer centers which have the needed experience in mesothelioma treatment. If you live in a small town, you may need to travel to a larger city to find a center with enough mesothelioma cancer experience. This experience advantage may be the key to getting the best possible treatment and be well worth any extra travel or inconvenience to you in the short-term.

These are some steps you should take to look for the best treatment center:

1-Ask other doctors and nurses for their opinions on hospitals in your area. Your primary doctor who was the first doctor to suspect that you have this type of cancer is the first person you should ask to suggest the names of 2 -3 good mesothelioma doctors and the hospitals where they are currently practicing to you.

2-You can also seek for information from an organization called The Joint Commission. This organization accredits hospitals that meet their very stringent although not all the hospitals they accredit are expert in cancer treatment.

You can go to their website at www.jointcommision.org and do a quality check on the performance of the cancer center that you are considering. You can search for the cancer treatment center by name, zip code, or state. You can also access them by phoning 630-792-5800.

3- Another organization that will be of immense help to you is the Commission on Cancer (CoC) program of theAmericanCollege of Surgeons. This program through their cancer treatment facilities approval program approves hospitals or facilities that have committed to provide the best in cancer diagnosis and treatment. Its list of approved facilities includes more than 1,400 cancer centers throughout theUnited States.

A good way to judge the quality of cancer care at a treatment facility is to find out if it has been approved by the CoC. If it has, you know it meets certain standards and offers a range of cancer care services. No matter its size or location, its ability to deliver quality cancer care is constantly being surveyed by the CoC.

CoC-approved cancer programs are found in many different kinds of hospitals or facilities. They may be in major treatment centers, community hospitals, or other diagnostic and treatment centers. Approved programs must provide state-of-the-art diagnostic and treatment services. They have many different specialists available to treat patients, and they can give you information on clinical trials and new treatment options. CoC-approved cancer programs also must offer life-long follow-up care to people with cancer. This gives patients ongoing long-term care so that any problems, such as late side effects, recurrences, or new cancers, are found and treated as soon as possible.


4- Finally you can also make use of the programs of the National Cancer Institute. This institute (NCI) is part of the U.S. National Institutes for Health. The NCI is dedicated to better understanding, diagnosing, treating, and preventing cancer for all people. Its goal is to support and enhance the quality of clinical cancer research. The NCI works with more than 60 cancer treatment centers in theUnited States. It recognizes 3 levels of cancer treatment centers, ranging from a comprehensive cancer center to the more basic cancer treatment center. These facilities are often housed at universities and research is a large focus.

You can get a list of the NCI-designated Cancer Centers and read more about the NCI by visiting the NCI Web site at www.cancer.gov. You can also learn more about your cancer and treatment options at the NCI Cancer Information Service, available at www.cancer.gov/cancertopics/factsheet/Information/CIS.

Published At: Isnare Free Articles Directory http://www.isnare.com
 
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Twitter Provides Additional Community Soundboard for Mesothelioma Patients

MesoRC.com, an online community and resource center developed to assist those affected by mesothelioma, lung cancer and other asbestos-related diseases, provides an extra source of valuable information with the introduction of Twitter. The goal is to provide an additional support tool for patients and their families.

Mellissa Hayon, LICSW, MesoRC's resident social worker and online host discusses a variety of issues with the community. Mellissa's Twitter feed, which can be accessed viawww.twitter.com/mellissahayon, tweets frequently on current issues involving mesothelioma and asbestos-related diseases and recommends resources for those whose lives have been affected by asbestos.

"Twitter is a quick, effective and easy way for me to pass along relevant and important information. My followers benefit from hearing what I am doing, receiving resources and support, being directed to my blogs, and receiving real time information about mesothelioma and other related topics geared towards mesothelioma patients," says Mellissa Hayon.

About MesoRC.com:
TheMesotheliomaResourceCenter is a resource for patients and their families with helpful information gathered from leading mesothelioma authorities. This mission has never been more pertinent than it is today, as thousands of newly diagnosed victims strive to cope with devastating diseases like mesothelioma and asbestos related cancers. TheMesotheliomaResourceCenter, has since served as a community of support - a place where victims can meet and talk with others who share their burden and where they can turn to for the most up-to-date information on everything related to mesothelioma.

TheMesotheliomaResourceCenter is part of Sokolove Law, LLC who has been reinventing how people obtain legal services for over 30 years. Our continuing mission is equality of access, regardless of ethnicity or income, and superior quality of representation and service within our civil justice system. For more information, please visit MesoRC.com.

http://7thspace.com/headlines/317673/twitter_provides_additional_community_soundboard_for_mesothelioma_patients.html

 
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Innovative Mesothelioma Video Library Wins Web Awards While Educating Viewers

 

Article Date: 29 Dec 2008 - 2:00 PDT

Diagnosed with Mesothelioma? Free Legal and Medical Guide

The SimmonsCooper law firm announced today that the Mesothelioma Video Library Web site, a free educational resource for patients and families affected by mesothelioma, has been recognized by the Web Marketing Association and W3 Awards for its innovation and excellence on the web. The Mesothelioma Video Library is the first video-driven Web site to address mesothelioma and asbestos-related issues.

"We started this site to reach out to mesothelioma patients and families in a fresh and meaningful way," said Michael Angelides, SimmonsCooper partner and asbestos attorney. "Using video allowed us to simplify the medical information for families, as well as show the personal side of the disease. It's our hope that people are able to watch these videos and realize that they are not alone in their fight."

Sanctioned by the International Academy of Visual Arts, the Web site has won two W3 Gold Awards in the categories of Health and Video. Less than 10% of all entries receive a recognition of that level. The Mesothelioma Video Library has also won a WebAward for Outstanding Achievement in Website Development, presented by the Web Marketing Association. All three awards are an affirmation of the site's credibility and effectiveness at communicating about mesothelioma.

The video-based Web site features over 75 educational mesothelioma videos and mesothelioma stories by victims and families dealing with the disease. The True Stories section gives families a forum to talk about how the disease has affected them, and the Common Questions section features the Mesothelioma Applied Research Foundation's Medical Liaison, Mary Hesdorffer, a nurse practitioner who has worked with patients and families for over a decade. The videos can be viewed at www.mesovideolibrary.com.

Angelides said he hopes to see the video library grow over time. "We're interviewing more families now and invite others to go to the Web site and share their stories," said Angelides. "We just hope this recognition helps shed more light on the disease."

About SimmonsCooper and the Mesothelioma Video library

SimmonsCooper LLC is one of the country's leading asbestos and mesothelioma litigation law firms. With offices inIllinois andCalifornia, the firm has represented over 2,000 patients and families affected by mesothelioma in nearly every state in the country. SimmonsCooper has also pledged over $10 million to cancer research and proudly works with top mesothelioma medical experts throughout the country, supporting their work toward a cure. The Mesothelioma Video Library is an educational outreach of SimmonsCooper designed to educate and engage victims and families about mesothelioma.

http://www.medicalnewstoday.com/articles/134045.php

 
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Mesothelioma Research Foundation of Association
800) 909-Meso(6376)
5716 Corsa Avenue, Suite 203

Westlake Village,CA91362

www.mesorfa.org

National Cancer Institute (NCI)
Building 31
Room 10A03
31 Center Dr., MSC 2580
Bethesda, MD 20892-2580
Phone: (301) 435-3848
Toll-free: (800) 422-6237
http://www.nci.nih.gov

American Cancer Society (ACS)
1599Clifton Rd., NE
Atlanta,GA30329-4251

Toll-free: (800) 227-2345
http://www.cancer.org/

American Lung Association
1740 Broadway
New York, NY 10019
Phone: (212) 315-8700
Toll-free: (800) 586-4872
E-Mail:info@lungusa.org
http://www.lungusa.org/

National Heart, Lung and Blood Institute (NHLBI)
6701 Rockledge Dr.
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: (301) 592-8573
E-Mail:NHLBIinfo@rover.nhlbi.nih.gov
http://www.nhlbi.nih.gov/

National Institute for Occupational Safety and Health
4676 Columbia Parkway, Mail Stop C-18
Cincinnati, OH 45226
Toll-free: (800) 356-4674
Fax: (513) 533-8573
http://www.cdc.gov/niosh

http://cancernet.nci.nih.gov
Reviews of current medical articles that deal with the diagnosis and treatment of Mesothelioma.


http://www.gretmar.com/webdoctor/OncologyCLSoft.html

Cancer News offers many links for many types of cancer, including breast cancer; colon cancer; gynecologic cancers; leukemia, lymphoma and myeloma; lung cancer; brain cancer and other central nervous system tumors; prostate and testicular cancers; skin cancers; links to sites created by cancer patients; and support groups.

http://www.cancernews.com/quickload.htm
A site that is scientific in nature but that provides thorough explanations of mesothelioma and its different forms.

http://www.graylab.ac.uk/cancernet/201071.html
Lung Cancer Online is intended to facilitate the time consuming and often frustrating process of learning about lung cancer, treatment options and support services.

http://www.lungcanceronline.org/
The American Cancer Society Web site offers comprehensive information and resources to help those who fight cancer.

http://www.cancer.org/
Oncolink is a multimedia oncology resource for information about cancer, and to provide educational information to both health care personnel and cancer patients and their families.

http://www.oncolink.upenn.edu/
The American Lung Association's mission is to prevent lung disease and promote lung health.  

http://www.lungusa.org/
Information about UPMC'sComprehensiveLungCenter, and links to other sites.

http://www.upmc.edu/clc/
Research Sites
This provides a wealth of information related to clinical trials, such as a listing of more than 41,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA.

http://www.centerwatch.com/

TheLungCancerInformationCenter is an electronic library of comprehensive educational materials on cancer for healthcare professionals and patients.
 
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Meridian tv news report covering our May meeting
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Meridian tvnews report covering our May meeting

Meridian tvnews report covering our May meeting of the Hasag group(Hampshire asbestos support & awareness group

 
 
Asbestos campaigners cycle from Clydebank to London
1:53

Asbestos campaigners cycle from Clydebank to London

 

Paul Glanville, Katrina London and Jason Addy arrive inLondon after cycling the length ofBritain to raise awareness of the devastating impact...

 
Libby, Montana
2:23

Libby, Montana

 

where many hundreds of people are sick or have already died fromasbestos exposure. The Environmental Protection Agency calls Libby the worst case...

 
1965 Armstong asbestos tile commercial
1:16

1965 Armstongasbestos tile commercial

n 1860, Thomas M. Armstrong, the son of Scotish-Irish immigrants from Londonderry, joined with John D. Glass to open a one-room shop in Pittsburgh...

 
Asbestos Tragedy Libby Montana 2004 USEPA
2:36

Asbestos Tragedy Libby Montana 2004 USEPA

Processed vermiculite from the WR Grace Libby MT Mine contained tremolite, a form of asbestos, that was allowed to contaminate local

 


4:38

About theAsbestos DiseaseAwareness Organization (ADAO)
Asbestos DiseaseAwareness Organization, ADAO, Linda Reinstein, BanAsbestos, www.adao.us

 

8:31
mesothelioma
Mesothelioma is an incurableasbestos cancer. This short film was produced to raiseawareness of the issues around mesothelioma. It...

 

 

3:08
Dr. Irving Selikoff PioneeringAsbestos Disease Researcher
Dr. Irving J. Selikoff was a remarkable physician and scientist who contributed to knowledge in several areas of medicine, includingasbestos...

 

 
 
 
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